"God doesn't give children with special needs to strong people; He gives children with special needs to ordinary, weak people and then gives them strength. Raising a child with special needs doesn't take a special family, it makes a special family."--Author Unknown

Wednesday, October 28, 2015

Cardiology and Urology Twofer, EKG, Field Trips, Service, Football, Pumpkin Walk

We have been staying busy at our house this past week.  Last Friday night we went to the annual Syracuse Pumpkin Walk.  We love going to this every year and seeing all the differently carved pumpkins.  Luckily, it was nice weather because you just never know what kind of weather you will end up with at this time of year.  We were glad G&G T could come along with us, too.  There were all sorts of pumpkins--there was even a carved watermelon that you can see in the corner of the picture:
Daniel just had to pull a GQ pose:
It was a fun night.
There were some pretty awesome pumpkins.

A haunted house:
The Hulk:
Saturday morning our ward had a day of service.  Aaron took Josh and Daniel along with him.  They first helped to clean the church then they helped with some yard work and picked a bunch of grapes for an elderly couple in the ward.

After the service was done we headed down to see a BYU football game.  It was a great game.  Here's Josh and Sarah watching the game:

It was a beautiful day for a outdoor game!
During the game Great Clips gave away free haircuts to all the audience members so on our way home we took advantage of our free haircuts.  The salon didn't know what hit them when we all walked in!!  It couldn't have come at a better time because all the boys were getting pretty shaggy.  Daniel and Matthew when first:
Here's the after--Aaron and I both got our hair cut as well.  Sarah just got a trim:
That's the first time Noah has ever gotten a haircut from someone other than me which is crazy!

It seems that Daniel's teacher really believes in field trips!  Last week Daniel had two field trips in just one week which was crazy.  His first field trip was to the IMAX theater Tuesday morning.  Aaron was able to be a chaperone, too.  Unfortunately, I told Aaron the wrong theater to go to which I felt horrible about!  Luckily, after waiting for 45 minutes at the wrong theater since he drove and didn't ride the bus, Daniel was able to borrow another chaperone's cell phone and call him to see where he was.  Thankfully, Aaron was able to drive to the right theater about 5 minutes away and made it before the movie started.  Here's the two enjoying their 3D glasses before the movie began:
Wednesday Daniel didn't have a school field trip, but he had a scout field trip to J&J Nursery--which is the same nursery where we got all of our yard plants when we put in our yard a few years ago.  Daniel said it was pretty interesting to see all the things they did there.  He also came home with two neat flowers that I hopefully can keep alive.  I haven't been doing very well in the houseplant department lately.  

Thursday morning Daniel had an all day field trip that I was going to be a chaperone on.  There only going to be three chaperones for the whole class so I really needed to be there.  Unfortunately, Noah came walking into my bathroom green as green could be as I was getting ready.  Luckily as soon as he started gagging I was able to grab him and get his head over the toilet before he started barfing.  DOH!  He couldn't have had worse timing.  Aaron and I had gotten some Fiiz drinks a few days before.  Aaron's drink had had cream in it and had sat in the car for a few days before I threw it out.  The day before I had run some errands with Noah and he chug a lugged the drink before I could stop him so I think that was what was the matter with him barfing wise.  Luckily, Grandma T was able to watch him so I could still attend the field trip, but Noah laid around all morning just like this poor guy:
Don't feel too bad by the afternoon he was bouncing off the walls again and he ate four tacos for dinner so he wasn't sick for too long.  Daniel's field trip we went to see the landfill and trash incinerator.  It was a very interesting visit.  It was fun to watch the guy maneuver the crane to pick up all the trash:
After the Wasatch Integrated Waste (landfill) visit we went to the Water Basin Water Conservancy to see how they clean the water for our areas drinking water.  It was interesting to see all the steps involved there.  Since I was only one of three chaperones it was tough keeping track of all 8 boys in my group.  I just have to say no matter where I go I am always surrounded by boys--which is exactly what happened when I heard who was in my field trip group.  Oh well what can you do?!  It was a fun trip and I was glad I was able to go with them.  Sarah had her class field trip down to the Aquarium last Friday.  I wasn't asked to chaperone which I was a little sad about, but after riding on the bus with all the kids from Daniel's field trip I was ok with that.  Kudos to all the bus drivers being able to drive with screaming, crazy kids on the buses!  Sarah had fun at the Aquarium which was good to hear.

Monday Sarah got quite the work up.  It was time for her to have a follow up visit with the pediatric Cardiologist and with the Urologist.  Since I only wanted to make one trip down to Primary Children's Hospital I had to schedule both visits two months in advance.  The Cardiologist visit was first.  It was just to follow up with Sarah after having Kawasaki Disease last year.  They did an EKG on her which showed everything as perfect--phew!  They are changing the recommendations for Kawasaki Disease because it may not be as benign as originally thought after the disease was over.  Luckily, Sarah hasn't shown any coronary vessel involvement, however, that doesn't mean she is out of the woods yet.  She has a slight increased risk of Coronary Artery Disease as she gets older.  That means we have to see the Cardiologist again in 5 years just to check her out again.  Luckily, the odds are in her favor so I am hoping that her heart stays happy and healthy!  Here she is getting measured:
She has grown two inches in the last 8 months!!  Here she is after the EKG and waiting for the cardiologist:
Right after seeing the cardiologist we headed over to imaging because Sarah had to have a radiographic cystogram.  That is where they insert a urinary catheter in.  Next they fill her bladder with dye that will show up on an Xray.  Then they have her go to the bathroom to see if she is still having reflux.  Unfortunately, she is still having reflux of the urine from her bladder up to her kidney.  However, since she hasn't had any infections within the last 6 months the urologist is going to have her stop taking her daily low dose antibiotics to see if she will start getting any infections.  If she doesn't get any infections we don't have to see the urologist for two years.  If she does get infections then we have to follow up in one year just to see if she is still having reflux issues.  They are hoping she will grow out of it since most kids do, but if she doesn't she may need surgery.  Sigh.  I don't know what to do with this girl!!  Good thing I love her!  After our visit with the urologist I had to fill Josh's emergency seizure medication prescription.  Since it is a specialized prescription only Primary Children's Pharmacy fills it so I decided to fill it while we were there.  While we waited for the prescription to be filled we grabbed a quick brunch from the cafeteria.  Sarah was a fun lunch date.  She also LOVES salads, too.  She picked out healthier food than I did.
Monday night for Family Home Evening we spent the evening at Lagoon Frightmares.  It was a lot of fun because it wasn't very crowded which was nice.  Nothing seems to scare Josh so he was my Haunted House partner.  There were two super scary haunted houses we hadn't been to yet.  Aaron and everyone else are not fans of haunted houses so Josh was my haunted house buddy and we visited the last two super scary haunted houses together.  Of course Josh had to stop by the photo op coffin:
We also went on some rides.  We had just gotten off Cannibal when Josh and Noah were running to get to the next ride.  Josh accidentally tripped Noah and Noah did a faceplant right into the concrete.  Ouch!!  He stayed down until I picked him up only to see blood everywhere.  DOH!!  He had quite a large gash in his cheek as well as cuts around his lips.  He also chipped two of his teeth, but not too bad.  Luckily, this isn't the first time we had a kid with a huge gash inside their mouth.  Last time it happened I called my sister who is an ER doctor and she said not to worry much about mouth gashes because the mouth heals so quickly.  I didn't worry too much about it this time either.  However, after that happened Noah was DONE and we had to go home.  Poor Noah's lips swelled up right after.  He also has some nice road rash in his chin to accompany the fat lip look he was going for ;).  Poor kid!
On the way out the kids wanted to stop for another photo op.  Here's Josh, Daniel and Sarah being science experiments:
It was a fun night until Noah fell down.  Good thing Noah woke up feeling none the worse for wear the next morning minus the chin road rash and cuts in his mouth.  Crazy kids!!

Sarah had her evaluation from the orthodontist yesterday.  Luckily, her mouth doesn't need immediate attention due to the overcrowding teeth issue, but she will need treatment in about a year.  We were glad to hear that we don't have to do anything right now.  That was nice to hear.  

Friday, October 23, 2015

F-16 Flight, Arizona Trip part 2, Checklists, Sweet People, BindweedJupiterfrost

Thursday morning Aaron had training all morning.  They assured us that the kids could come along and it would be interesting.  I don't think they really knew how our kids could be when they said that, though....We got there bright and early.  It was interesting to see Aaron get outfitted in a jumper, g-suit (which looks like a horribly uncomfortable corset), boots, helmet and face mask.  Aaron was going through the training with two other guys--one from Hill Air Force Base and one from Georgia.  It took about two hours to get Aaron outfitted in all his gear.  By that time the kids had had enough and were starting to get rowdy.  Since this training wasn't just for Aaron I didn't feel like I could keep them there for the other three hours they had left.  I decided to take them all back to the hotel instead.  Aaron was just fine with this decision.  Besides the rest of the training involved going through all worst case scenarios which I really didn't want to know about all the possible horrible things that could happen to my husband while he was flying.  I really thought ignorance is bliss was the best way to think about that.  Anyway here's the kids watching Aaron get outfitted.  Aaron is the third person from the left picking out his g-suit.
After getting his jumpsuit on Josh randomly asked Aaron, "Wow, how did you get that on?"  It came out kind of rude although I don't think Josh meant it that way.  Everyone in the room got a good laugh about that one.  I think Josh was just wondering how he got the jumpsuit on since it was all just one piece instead of a coat and pants.
Here's Aaron getting the g-suit fitted on his body.  Wow that looked like it was really uncomfortable because they had to get it so tight.  The g-suit helps keep the person from passing out while flying and doing maneuvers.  It works by pumping up with air to keep the blood from draining from their heads while twisting and turning.  For example I have almost blacked out by going on a fast roller coaster--this g-suit would prevent that seeing as riding in a jet is a million times worse than going on a roller coaster.  I hope that made sense...
The face mask has oxygen flowing to help keep the person oxygenated since they will be so high up in the sky.
After I left and took the kids with me Aaron commented about how much quieter it was in the room.  I believed him.  He had lots more training and took pictures of part of it.  He learned how to use the parachute in case he had to eject.  They had a mock parachute to learn on.  Aaron said it was not comfortable at all.
They had a mock set up of the jet where Aaron could learn how to strap in and how to use some of the controls.
He's making sure he understands:
After the training we went and picked Aaron up.  We had to change hotels that night so we spent the rest of the day moving hotels and then swimming the rest of the evening.  It was awesome to have it be hot enough to swim in an outdoor pool in October!!

Later that night we needed to get to bed early since we had to leave our hotel at 5:50 am to get to the base on time for Aaron's appointment the next morning.  Aaron's flight was at 8:30am, but they had some more training to do with the pilot and Aaron so that's why we had to get there so early.  When we woke up the next morning Aaron was so nervous.  For the most part the kids were ok with getting up so early and getting ready.  We had to skip breakfast because it was so early.  Doh!!  Luckily, we did remember to put his Scopolamine patches on behind his ears to help with motion sickness and nausea while flying.  We had gotten the prescription from Aaron's doctor about a month before since the doctor had to write a note saying Aaron was fit to fly.  They told Aaron to be well hydrated and to eat a bland dinner and breakfast in case he ended up barfing which happens quite often.  They said to eat bland foods that would taste the same coming back up as they did going down.  Gross.  Here's Aaron get all his garb on with shaking hands because he was so nervous that morning:
Aaron met with the pilot while the rest of us got to tour the facilities.  We got to see how they pack parachutes and change out supplies in the emergency bags.  It was fun to see the behind the scenes stuff.  During our tour Josh had complained about being cold while he slept the night before. The sweet tour guide rounded up a space blanket for Josh to keep so he wouldn't be cold in the hotel room again.  What a crazy kid!  We also all got some emergency water packs to try.  The kids did not like the way they tasted, though.

When the time came for us to start heading out to the plane we all had to ride on golf carts.  Seeing as there were so many of us we had to take two carts.  When we got outside it was so loud!!  Luckily, they gave us all noise cancelling ear muffs to wear.
I have no idea why Noah is walking like that.  What a funny kid!
Here's Aaron getting ready to get in the jet with his pilot named Oscar (Jeff Kennedy) and the sweet lady that outfitted him and took care of me and the kids while we waited whose name was Kate.
Here's all of us posing in front of the jet:
Here's Aaron getting strapped in:  Did I mention that he was so nervous?
Getting the face mask on:
Here's the pilot making sure Aaron is strapped in properly:
Here's the jet number.  Aaron was curious about this because with this number you can follow the jets history.  He looked it up when we got home and found out it used to fly with the Thunderbirds. Awesome!

Here's the pilot looking everything over before starting:
Here's the rest of us watching all the stuff that is going on.  There is a lot of prep work to get the jet in the sky!
They started the engine:
Waiting and watching:

When it looked like they were getting close to taking off they loaded me and the kids in a truck to go down the flight line in order to see him take off.  Here's the flight line as we drive down it:
It was amazing to see Aaron take off.  He came out so fast and right after he passed us the pilot took the plane in an unrestricted climb which is where they go fast and vertical for as long as the airspeed will allow.  He went from 0 to 18,000 feet in seconds.  Aaron said he felt his stomach just drop, but it was exhilarating.  It was neat to watch.
When we all got back to the radio room they tried to contact the pilot so we could talk to Aaron while he was flying.  The first time we tried they were too far away.  The lady said they were probably close to the Mexico border.  A few minutes later they tried again, but the pilot had just started doing a loop and Aaron was unable to talk during that.  A few minutes later we tried again and it was nice to hear Aaron's voice and see that he was loving it.
The whole flight was only about 45 minutes so we didn't have to wait too long until it was time for them to land.  Good thing they had cartoons for the kids to watch.  When the plane was coming in we went outside were able to see the jet circle around until they could land:
It was fun to know that Aaron was in that plane!
It was nice to see the plane on the ground, though.  I got to breath a sigh of relief--whew!

Here they are parking the plane if that's what it's called.
Aaron, although he was green around the gills, did not toss his cookies.  He proudly held up his barf bags to show us they were empty.  They had us all take a bet on whether that would happen or not.  All of us except Matthew bet that he would throw up.  Matthew was happy to win that bet.
Getting out of the plane:


Here's Aaron and pilot posing for the after pictures:
Us posing along with Aaron and the pilot:
We had such an early morning that Noah hung on Aaron the whole way back to the building:
Aaron was presented with a certificate that was quite humorous signed by the pilot proving that Aaron actually went through with the flight.
Aaron was quite proud of the fact that he didn't vomit--so proud, in fact, that he took his empty barf bags to work Monday morning to keep at his desk to prove he's a tough guy.  Good thing I love him--haha!

After the flight Aaron had to take it easy for a little while because he was still a bit dizzy and disoriented.  Luckily he was able to function about an hour after.  He still wasn't back to 100%, but able to function.  Since we had had such an early morning and hadn't really had breakfast we decided to take the kids to a Pizza Hut Buffet so we didn't have to listen to their whines of how hungry they were.  That way they could eat until they were full and be able to pick out all the things they wanted to eat by themselves.  The Pizza Hut wasn't very busy which was another bonus.  After Aaron and I got the kids helped and settled down to eat we were able to enjoy our meal.  The kids were actually pretty well behaved for that lunch.  About 20 minutes after starting lunch the server came over and told us that a man who had just left had anonymously paid for our meal.  Oh I could have just cried.  How sweet.  People can be so awesome!  It made me want to pay it forward :).

After lunch we headed over to Colossal Cave to check it out.  We had to 30 minutes until our designated tour time so we just enjoyed the views:
As the group ahead of us were starting their tour Noah noticed the iron bars on the cave door gate and got upset. You can't see them in the picture, but they were there. As the group was entering the cave  Noah yelled out,"DON'T GO! IT'S A TRAP!!"  He figured once they closed the barred gate on you you would never leave again.  What a crazy kid.  Luckily, he saw the group come back outside after their tour so he knew it wasn't a trap and willingly went in when it was our turn.
The cave was interesting, but my favorite cave is still Timpanogos Cave in American Fork Canyon.  Josh liked chatting it up with the tour guide.
There were some interesting things to see, stories to hear about and lots of stairs to climb up and down.

After our cave tour we visited Saguaro National Park.  The Saguaro Cactus is protected in Arizona and they are trying to increase their populations.  The cactus is only found in the Sonoran Desert and through Mexico.  The Saguaro National Park was formed to help with increasing the plant populations.  It was made a National Park in 1994.  As we visited we tried to take a picture of the biggest cactus we could find.  Some of them were huge!
It was a really pretty park!
After the cactus dies it leaves behind a woody skeleton which looked interesting:

It was a fun afternoon.  Also while we were in Tuscon we drove by the airplane boneyard as well as the Pima Air and Space Museum.  We didn't stop by the museum because it was really expensive so we just drove by and looked at the rows and rows and rows of grounded airplanes.  There were a TON!!
During Aaron's Friday morning training one of the trainers recommended getting a Sonoran Hotdog.  That's what we decided to eat for dinner.  It is a hot dog wrapped in bacon covered with pinto beans, pico de gallo, cut up fresh tomatoes, grilled onions and jalapeno mayonnaise with a soft hot dog bun. It usually comes with mustard, but Aaron HATES everything about mustard especially the smell so none of the hot dogs had mustard on them.  It was really good despite not having any mustard on them.
As I have previously mentioned our hotel had a hot, cooked to order breakfast which Daniel LOVED.  Every morning he got a huge pile of bacon on his plate and ate it all.  Daniel was in heaven every morning knowing he was going to get some bacon.
Speaking of children I lost track about how many looks/stares and comments we got by having such a big family by todays standards.  Most people just stared, but the ones who commented always said, "Wow I would hate to see what your grocery bill is like!!"  or "One girl?!  I bet she's a princess!"  To both comments I would just say, "You have no idea--haha!" Most people were polite and I am glad those that weren't polite kept their comments to themselves.  However, the last morning before our LONG drive back home we were eating breakfast when a lady walked by and gave me a dirty look because my kids were being a little too loud for her standards.  As she did that she spilled her coffee all over herself.  I had to laugh at that because my kids weren't being that crazy or loud and, trust me, I know how crazy and loud they can be!!

After breakfast we stopped by to feed the fish in our hotel courtyard.  They also had four turtles the kids tried feeding, but the fish ended up getting all the food because they were faster.

On our way home we hadn't gone too far before everyone had to stop for a potty break.  We stopped by Cabela's and while we waited for everyone to go potty we looked at their fish in the aquarium.
We also drove by and saw the Gilbert, Arizona temple.  It was beautiful!
We did a University of Phoenix Stadium tour where they host the Cardinal Football team and have also hosted a number or Superbowls in the past 10 years.  It was ginormous!
We exited the tour through the gift shop where Sarah and Noah found the foam hands and tried them on.
Wow it was a LONG drive back!! I am so glad for Books on CD!  The kids actually enjoyed listening to them as we drove which hasn't always been the case on road trips in the past.  It was fun to hear them requesting us to start the book as soon as we were driving after any kind of stop we made.  We finally made it back home late Sunday night.  Too bad we didn't get a day to recover before we had to come back to reality!  It was so hard for everyone to get up and start back to reality the next morning. Let's just say Monday morning was not a great morning for anyone!!   After Sarah had gone to school that morning I found her checklist that she had made for herself.  What a funny girl!
I should have made my own checklist because I had a hard time getting my act together Monday morning!!  I needed a bit more vacation recovery time and I think I can say that went for everyone else in the family!!

Sarah lost a tooth last night.  As she was getting ready for bed she insisted that she needed to write the Tooth Fairy a letter asking what her name was.  She then drew some hearts on it, too.  Good thing the Tooth Fairy didn't forget to come that night!!  Phew!  And if you didn't know Sarah's Tooth Fairy's name is Bindweed Jupiterfrost.