Yesterday morning I got the dreaded call from the school. The phone started ringing a little after 9 am which never does mean anything too good. I answered it only to find it was Matthew's teacher. She knows I hate calls from the school so as soon as I answered the phone she immediately said all in one breath, "Hi Rebecca this is Mrs. Larsen and everything is ok at school." It is time for Matthew's IEP (individualized education plan) to be reviewed in a week. Mrs Larsen, Matthew's teacher, is setting new goals for him and one of the goals she has for him is to learn life skills which means he will be starting to have some blended services with the Functional Skills class. This was a little blow to us. The Functional Skills class is for kids who are mentally or physically handicapped where regular education would not benefit them. Aaron and I knew eventually Matthew would need to transition to the Functional Skills class, but we didn't think it would happen until he started high school. However, in talking with his teacher that morning she explained that she only wanted him to spend one class period a day in the functional skills class to allow him to participate in their weekly field trips in the community. The functional skills class takes weekly field trips into the community to learn how to work with people in the community and to learn how to work with money. I think this is a great opportunity for Matthew. The reason why his teacher was calling that morning was because the functional skills class was having their field trip that day and wanted to see if I would be ok if Matthew went along with them. That way the functional skills teacher could get to know Matthew a little bit and be able to write some goals on his IEP for him since he will be participating in her class a bit more. That day the class was going out to get lunch at Carl's Jr. and then grocery shopping at Walmart. This exercise is supposed to help the kids read a menu and prices then look at how much money they have and order appropriately. In going to Walmart they are supposed to come with a grocery list from home with a few things to make a simple meal. They then pick out their groceries and make sure they have enough money to pay for the items. Anyway, Matthew went along and did ok. He had a little bit of a rough time following the rules, but it is a learning curve. Matthew did tell me he ran into someone from our ward at the store. While he was telling me about it he got pretty excited so I can only imagine how excited he was at the time of seeing her. He said he ran over to her and introduced her to everyone. He was so excited to run into someone he knew. The teacher had a hard time getting him to move on to grocery shopping, but eventually he did. What a funny boy. Anyway our IEP meeting is next week so hopefully things will run smoothly.
This week has been such nice weather that I have been walking Sarah to school in the mornings. The other morning we got there early enough for her to play on the kindergarten playground. Well Noah went over and started playing with her. That morning there were lots of other kindergartners playing which made the playground kind of crazy. Noah was running around a corner when a kindergarten boy accidentally elbowed Noah right in the nose. The boy felt bad and tried to tell Noah sorry, but Noah was already running over to me. Unfortunately, by the time Noah reached me his nose was gushing blood. There was blood everywhere. Noah kept trying to wipe off his nose which ended up smearing it all over me, all over his coat and clothes. I tried pinching his nose and taking him inside to find a tissue somewhere, but Noah hated having me pinch his nose and he kept pushing my hand away which made it an even bigger mess. Finally, I reached a sink and some tissues. After calming him down he let me pinch his nose and hold pressure for a few minutes to stop the bleeding. It took another few minutes to clean up the huge blood mess. Unfortunately, the only sink and tissues I could find were right by all of the fifth grade classroom doors so during all of this chaos I had the fifth graders gawking at us as they were on their way to their classrooms. Awesome. Oh well we like to keep things exciting. That whole episode didn't slow Noah down because the next morning he was ready to go and play on the playground again.
About a month ago we got a dreaded call to meet with the Stake Presidency. Oh dear. Aaron scheduled the appointment for a Sunday morning. In the meantime we had to figure out how to juggle the kids with the appointment and finally decided to take Noah and Matthew with us to the appointment and leave the other three at home since they can usually be ok by themselves for about 30 minutes. We got there early Sunday morning and when it came time to get back inside the Stake President's office I talked to Matthew and told him to wait out in the waiting room for a few minutes and that we would be back shortly. Aaron, Noah and I went on back to the Stake President's office. No sooner had we sat down and the door was closed did Matthew start beating on the door saying, "Hey Mom!!" I jumped up and opened the door and quietly told Matthew to go and sit back down and wait for us for a few minutes. Matthew is a little antsy, but he did wait for about 5 minutes before he came back to beating on the door again. However, in that five minutes the Stake President extended the call of Elder's Quorum President to Aaron. Seeing as Matthew was a little too antsy to wait in the waiting room by himself for longer than 5 minutes I just let him inside the office for the rest of the appointment. The appointment took a little longer with Matthew with us because Matthew (aka Chatty Cathy) was trying to tell the Stake President about what was going on in Young Mens and asking him if he could release a few people and then he started asking questions about what was the next activity in Young mens, etc. Oh my goodness it was a full time job trying to keep Matthew quiet long enough to hear what the Stake Presidency was trying to talk to Aaron about. Anyway, Aaron was overwhelmed to say the least since this is something he'd never done before. Good thing he had a month to think about it before he was set apart for the calling in the ward this last Sunday. I think Aaron will do great. I just have to get myself a little more organized now since Aaron will be gone a little more especially on Sunday mornings. I never thought I would ever say this, but good thing we have late church. That way I can have some extra time to get five kids ready Sunday mornings, get dinner in the crock pot and prepare my primary lesson while Aaron is in meetings. Wish me luck on Sunday since it will be our first go around on this crazy schedule :). I do have to say that at least I am grateful Aaron will be able to still sit with me on the bench during sacrament meeting because I do still need help keeping my brood under control during sacrament meeting....
Anyway, last Sunday all the primary kids got to sing two songs during sacrament meeting. It was so weird to only have Matthew sitting with Aaron and me on the bench! It was Noah's first time getting up to sing. I was wondering if he would be ok getting up there, but he did great. He didn't sing, though, but at least he got up there. That's a good start, right?! Josh, Daniel and Sarah all did a good job singing, though. Noah just sat up there and pulled faces at me and waved. Awesome. Anyway, later on during church Aaron was set apart during Elder's Quorum as the president along with his counselors and I was able to see it happen. I had to bring Noah along with me because he won't leave my side. He was a little stinker during the whole thing, but it was a beautiful blessing. I am sure Aaron will transition to the position fabulously.
Last Thursday was Aaron's yearly routine neurology appointment. Since the appointment was during school hours and we were down to only two kids we decided to get a quick bite to eat afterward. Also since Daniel wasn't with us we went to the most Daniel unfriendly place we could think of--Five Guys Burgers. I am sure that even walking through the door Daniel would go in to anaphylactic shock due to all the peanuts and peanut dust around the place so the only time we can go is when Daniel isn't with us. After ordering your food you can sit down at the table and crack open roasted peanuts and eat them. I am embarrassed to say this is the first time Sarah has ever had shelled peanuts and she loved them. I think she ate more peanuts than her sandwich which was funny.
Last Friday morning was Josh's neurology appointment. For whatever reason I had made the appointment for 8 am down at Primary Children's in Salt Lake--I don't think I was thinking clearly when I did that. They like you to be there 30 minutes before your appointment time so that meant we had to leave our house at 6:30 am--bleh! Thankfully it was Aaron's off Friday from work so he was home to get the kids ready and off to school. However, we had both forgotten about Sarah's hair needing to be combed. Aaron has only done Sarah's hair one other time and let's just say it didn't stay in very long despite the 10 elastics he had put in it. He got to try it again Friday morning and this time he did better. He did a pony tail that did stay back for most of the day even if it did take him 30 minutes to get all the hair inside the elastic. What a good dad to try. Here's the 'fancy' pony tail done by dad:During Josh's appointment we found out that he is a growing boy. He is now 5'1" and 85 pounds. We had to increase his medication dosage accordingly, too. Also if he can make it until July being seizure free he will have gone two years being seizure free--wahoo! By going two years seizure free that means there is a chance he can wean off his medication. Although there is a flip side to this--that means they want to try another sleep deprived EEG to see if there is any seizure activity to see if he can handle being weaned off his medication. Oh dear. This completely scares me. The last sleep deprived EEG he had 3 1/2 years ago ended up in Josh going in to status epilepticus (uncontrolled seizures), an ER visit at McKay Dee and then being transported via ambulance down to Primary Children's Hospital for 4 day hospital stay because they couldn't get his seizures under control. So needless to say this is scary for me. I told the doctor this and she said we still need to try. I also told her we have tried to wean him off before two other times and both times he started having seizures again. She said by going two years seizure free he has just as good of a chance as weaning off as someone who hasn't tried to wean off before. Luckily I have until late July/early August to have to schedule the EEG. Hopefully by then I will be more prepared. We did need to get a new prescription for his rescue medicine that can only be filled at the Primary Children's Pharmacy. It is specially prepared nasal mist Versed that we are to give for any seizure lasting longer than 5 minutes or any seizure cluster. It is the only way to stop the seizures immediately so we have time to call 911 to get help. I am so glad for the new nasal spray since the last rescue medicine (which was super expensive) had to be delivered via the bum--not so great. Anyway, since it takes time to mix up at the pharmacy we had 30 minutes to kill before we could pick it up. Why not have a morning breakfast date with my favorite Joshy boy?! Between Sarah's hospital stay a few weeks ago and today I just couldn't get enough of Primary's Cafeteria--haha.
After Josh's visit I dropped him off at school and came and picked up Aaron, Sarah and Noah to pick up some groceries at Sam's Club. I don't know what Sarah's problem was, but she was having a hard day that day. If you looked at her wrong she would burst into tears. It was bad. Since it was about lunchtime Aaron stopped by to pick the kids up a cheap hot dog. After Aaron ordered Sarah decided she wanted pizza instead. We told her that we already got a hot dog and it was too late to order her a slice of pizza. She did not like that answer and came unglued. It was pretty bad. The guy next to us started laughing and said he had five daughters and totally understands the girly irrationality and crying thing. You can definitely tell she is my child because whenever she cries her face breaks out in red blotchiness that stays around for at least 20 minutes afterward just like me. I have always wished I could be a closet crier, but, alas I am not because my blotchy face gives me away. Looks like I have passed that on down to my daughter--poor girl.
The other afternoon after Noah said he wasn't tired, we sat down to watch a show. Within 10 minutes he was completely out. This kid still needs naps, but I don't want to force the issue because I like the cuddles after he falls asleep. I don't have too many more years of this so I am enjoying it now.
Wednesday morning was Dads and Donuts day at the elementary school. I am so glad Aaron is able to go to these things and likes to go to them. He even had an extra neighbor kid tag along, too. They all had fun eating their donuts, reading a story and looking at their different projects in their classrooms.
Wednesday night was the cub scout Blue and Gold Banquet. It was lots of fun. It was a western theme and so they made different wanted posters for each cub scout. Here's Josh's:
Daniel's:
For the table centerpieces they did these small wanted plaques, too. Here's Daniel's:
Josh's:
The beginning of the program they did a few skits. Here's Josh helping in one of them:
After dinner they had different western activities set up for everyone to do. Sarah and Noah loved coloring and cutting out their snakes that went inside their boots:
Josh liked the photo booth with the different props:
They had a small spring horse set up that Josh tried out before he realized he was way too big to ride:
It was just the right size for Noah, though and he spent forever playing on it:
Daniel at the photo booth:
They had a relay race, but they were too fast for me to get a good picture of:
All in all it was a fun night. Matthew was there with us, but in the middle of dinner the young mens activity started and Matthew wanted to participate in that so he wasn't around for the after dinner activities. He was with us during dinner, though.
I really have been impressed with Primary Children's Hospital this time around. This week Sarah got a letter from them. The letter was a note saying how much they loved taking care of her while she was in the hospital. It was really cute.
I am glad that they really do try to make a hospital stay for kids a better experience than it would have been otherwise. Hopefully we don't have any more hospital stays there, but if we do at least it is a good place. I have a love hate relationship with that place. I love that it is available, but hate that we need their services :/. Anyway, we get a few weeks reprieve from visiting there. Our next visit will be in two weeks with Sarah's next echocardiogram and cardiology visit. Until then we will not miss that place :).